Prostate Cancer Research Institute
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Surviving Gleason 8 Ductal Prostate Cancer | Ben Nathanson & Alex Scholz #PCRI
In this inspiring video, we delve into the incredible journey of Ben Nathanson, a prostate cancer survivor who transformed his battle into a beacon of hope for others. Despite facing a challenging diagnosis and enduring lifelong side effects from his treatment, Ben chose to share his story through a heartfelt and informative blog (Progressions: A deep look at prostate cancer: bennathanson.substack.com).
His writings offer a unique perspective on living with prostate cancer, providing support, encouragement, and valuable insights to fellow patients and their loved ones. Join us as we explore Ben's unwavering positivity, resilience, and his impact on the prostate cancer community.
Ben's blog: Progressions: A deep look at prostate cancer: bennathanson.substack.com
Learn more about Ben: Ancan: ancan.org/team/ben_nathanson
Join a support group: ancan.org/groups/
Donate and support the incredible work of AnCan: ancan.org/donate/
Donate to PCRI: pcri.org/donate/
For more information, visit pcri.org
Don't know your stage? Take the quiz: visit www.prostatecancerstaging.org
To learn more about prostate cancer, visit www.pcri.org
Sign up for our newsletter here to receive the latest updates on prostate cancer and the PCRI: pcri.org/join
Who we are:
The Prostate Cancer Research Institute (PCRI) is a 501(c)(3) not-for-profit organization that is dedicated to helping you research your treatment options. We understand that you have many questions, and we can help you find the answers that are specific to your case. All of our resources are designed by a multidisciplinary team of advocates and expert physicians for patients. We believe that by educating yourself about the disease, you will have more productive interactions with your medical professionals and receive better individualized care. Feel free to explore our website at pcri.org or contact our free helpline with any questions that you have at pcri.org/helpline. Our Federal Tax ID # is 95-4617875 and qualifies for maximum charitable gift deductions by individual donors.
Переглядів: 4 320

Відео

Cyberknife for Prostate Cancer | #Markscholzmd #Alexscholz #PCRI
Переглядів 6 тис.День тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:23 What is CyberKnife? 1:45 Is one form of radiation therapy, superior? 2:38 What side effects are associated with beam radiation? 4:18 Do most radiation centers use gel spacers? 5:30 How much does the distinction between IMRT and SBRT matter? 7:32 Has CyberKnife changed to be more effective over time? 9:44 More rapid radia...
Is PSA Density Still Relevant? #ProstateCancer | #MarkScholzMD #AlexScholz #PCRI
Переглядів 7 тис.День тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:20 What is PSA density? 2:47 What forms of imaging are used to determine prostate size? 3:40 At what point in the screening process would a patient get an MRI? 5:02 Are MRI scans usually covered by insurance? 5:27 Can PSA density play a role in deciding a treatment? 6:53 Is there a correlation between prostate volume and ca...
Penile Atrophy After Surgery & Radiation | #MarkScholzMD #AlexScholz #pcri
Переглядів 11 тис.14 днів тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:26 What is penile atrophy? 1:35 Can penile atrophy be preemptively avoided before surgery? 3:33 How would a patient learn to give themselves penile injections? 4:23 When should a patient approach their urologist about penile injections? 5:28 When should a patient begin taking medication's like Viagra or Cialis? 7:15 Can rad...
Managing Terminal Prostate Cancer | #MarkScholzMD #AlexScholz #PCRI
Переглядів 9 тис.14 днів тому
For help, visit pcri.org/helpline 2023 Advanced Prostate Cancer Treatments, Eugene Kwon, MD | ua-cam.com/video/-RVVq0uDAEE/v-deo.html Understanding Metastatic Disease: ua-cam.com/users/ThePCRIsearch?query=metastatic Hormone Therapy: ua-cam.com/users/ThePCRIsearch?query=Hormone therapy Chemotherapy: www.youtube.com/@ThePCRI/search?query=chemotherapy Pluvicto: www.youtube.com/@ThePCRI/search?quer...
Dealing with Anxiety & #ProstateCancer | #MarkScholzMD #AlexScholz #PCRI
Переглядів 6 тис.14 днів тому
Support Groups Resources: pcri.org/supportgroups ancan.org/prostate-cancer/ zerocancer.org/help-and-support malecare.org/support-groups/ Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:27 How can patients in the process of being diagnosed combat anxiety? 2:57 What is the pace of prostate cancer's development like? 4:57 How can couples deal with prostate cancer anxiety to...
Gleason 9 #ProstateCancer | Answering Your Questions | #MarkScholzMD #AlexScholz
Переглядів 8 тис.21 день тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:17 Can you address paralysis and how it relates to metastatic disease 1:55 PSA started at 3500, 6 months ADT dropped to 0.6. What about triple therapy now? 4:33 Patient had surgery, PSA rose, then radiation with ADT, 2 years later rising again. What now? 7:08 RP in 2021. Recent doubling rate, PSMA scan shows 2 lymph nodes. ...
Hormone Therapy & Side Effects For High-Risk (Gleason 8) #ProstateCancer | Mark Scholz, MD #PCRI
Переглядів 13 тис.21 день тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:30 Why is Gleason 8 cancer considered "high-risk?" 2:57 Do men with localized Gleason 8 prostate cancer need hormone treatment? 4:38 Does the volume or location of the disease affect the treatment plan? 6:38 Are PSMA scans, usually covered by insurance for high-risk patients? 7:19 What is the difference between first and se...
PSA Over 1000: Prognosis and Treatment | #MarkScholzMD #AlexScholz #PCRI
Переглядів 9 тис.21 день тому
Support Groups Resources: pcri.org/supportgroups ancan.org/prostate-cancer/ zerocancer.org/help-and-support malecare.org/support-groups/ For more information, visit pcri.org 0:22 What does a high PSA indicate about a patient's prostate cancer? 2:25 How severe is the prognosis for prostate cancer metastasis? 4:45 How effective is spot radiation following hormone therapy and chemotherapy? 5:54 Do...
Radiation Therapy: Long Term & Short Term Side Effects #ProstateCancer | #MarkScholzMD #AlexScholz
Переглядів 35 тис.28 днів тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:34 Do different forms of radiation therapy have different side effects? 2:50 What are the short term side effects of radiation treatment? 3:30 How does radiation therapy cause later-occurring side effects in the prostate? 6:41 What is the definition of a "center of excellence?" 8:29 Are sexual side effects from radiation th...
Gleason 6 #ProstateCancer 101 | #MarkScholzMD #AlexScholz #PCRI
Переглядів 5 тис.28 днів тому
Active Surveillance Patients International: aspatients.org The Active Surveillor: howardwolinsky.substack.com 0:24 What is Gleason 6 prostate cancer? 2:22 If it doesn't metastasize, why is it called cancer? 4:26 Clinical study examines whether Gleason 6 prostate cancer metastasizes 6:56 Spread is something that occurs before the prostate is removed, not after 7:55 Can Gleason 6 prostate cancer ...
Chemo, Hormone Therapy, and Radiation For Advanced Metastatic #ProstateCancer #MarkScholzMD #PCRI
Переглядів 7 тис.Місяць тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:22 Which prostate cancer patients are most eligible for triple therapy? 2:08 Which Gleason scores are most likely to require triple therapy? 3:31 Is triple therapy always required in certain situations? What about lymph nodes? 7:21 Is triple therapy more advisable for very young prostate cancer patients? 9:01 What are the u...
What Does Blood In The Urine Mean? | Prostate Expert, Mark Scholz, MD
Переглядів 5 тис.Місяць тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org 0:15 What could cause blood to appear in someone's urine? 2:51 Can BPH ever cause blood to appear in the urine? 4:50 What is the procedure of getting a cystoscopy like? 5:47 How easily accessible is Cxbladder? Its out covered by insurance? 6:12 How likely is cancer as a potential cause for blood in the urine? 7:00 How medical...
Imaging Alternatives For PSMA Negative #ProstateCancer Patients | #MarkScholzMD #AlexScholz #PCRI
Переглядів 10 тис.Місяць тому
Donate to PCRI: pcri.org/donate/ For more information, visit pcri.org Prostate Cancer Support Groups: ancan.org/prostate-cancer/ zerocancer.org/help-and-support/find-support-group healthunlocked.com/advanced-prostate-cancer 0:21 What is the procedure for imaging the ~10% of patients where the PSMA scan doesn't work? 4:06 The situation is not common in most newly diagnosed patients 4:58 How effe...
Prostate Imaging: MRIs & PSMA | Steven Raman, MD & Mark Moyad, MD, MPH | #PCRI #ProstateCancer
Переглядів 4,2 тис.Місяць тому
Prostate Imaging: MRIs & PSMA | Steven Raman, MD & Mark Moyad, MD, MPH | #PCRI #ProstateCancer
#ProstateCancer Q&A | 2024 #PCRI Mid-Year Update | Mark Moyad, MD, MPH & Mark Scholz, MD
Переглядів 11 тис.Місяць тому
#ProstateCancer Q&A | 2024 #PCRI Mid-Year Update | Mark Moyad, MD, MPH & Mark Scholz, MD
Treating Advanced #ProstateCancer with a High PSA | #MarkScholzMD #AlexScholz #PCRI
Переглядів 11 тис.Місяць тому
Treating Advanced #ProstateCancer with a High PSA | #MarkScholzMD #AlexScholz #PCRI
Advanced #ProstateCancer Q&A | Eugene Kwon, MD & Mark Moyad, MD MPH | #PCRI
Переглядів 10 тис.Місяць тому
Advanced #ProstateCancer Q&A | Eugene Kwon, MD & Mark Moyad, MD MPH | #PCRI
Genetic and Germline Testing + Q&A | Brian Helfand, MD & Mark Moyad, MD, MPH #PCRI
Переглядів 1,9 тис.2 місяці тому
Genetic and Germline Testing Q&A | Brian Helfand, MD & Mark Moyad, MD, MPH #PCRI
Genetic Testing For Prostate Cancer | BRCA | #MarkScholzMD #AlexScholz #PCRI
Переглядів 7 тис.2 місяці тому
Genetic Testing For Prostate Cancer | BRCA | #MarkScholzMD #AlexScholz #PCRI
Replacement Therapy, Cialis, Penile Atrophy, TRT, & #ProstateCancer | #MarkScholzMD #AlexScholz
Переглядів 16 тис.2 місяці тому
Replacement Therapy, Cialis, Penile Atrophy, TRT, & #ProstateCancer | #MarkScholzMD #AlexScholz
Intermediate-Risk: Do You Need Hormone Therapy With Radiation? | #MarkScholzMD #AlexScholz #PCRI
Переглядів 26 тис.2 місяці тому
Intermediate-Risk: Do You Need Hormone Therapy With Radiation? | #MarkScholzMD #AlexScholz #PCRI
RSVP NOW! March 30, 2024 | Free Virtual #PCRI Event! | PCRI's 2024 Moyad + Scholz Mid-Year Update
Переглядів 2,3 тис.2 місяці тому
RSVP NOW! March 30, 2024 | Free Virtual #PCRI Event! | PCRI's 2024 Moyad Scholz Mid-Year Update
Navigating #ProstateCancer: Expert Tips on Choosing the Best Prostate Cancer Care | #MarkScholzMD
Переглядів 18 тис.2 місяці тому
Navigating #ProstateCancer: Expert Tips on Choosing the Best Prostate Cancer Care | #MarkScholzMD
Managing Liver & Lung Metastases in Prostate Cancer | #MarkScholzMD #AlexScholz #PCRI
Переглядів 4,5 тис.3 місяці тому
Managing Liver & Lung Metastases in Prostate Cancer | #MarkScholzMD #AlexScholz #PCRI
Recovering Testosterone After Hormone Therapy for #ProstateCancer | #MarkScholzMD #AlexScholz #PCRI
Переглядів 17 тис.3 місяці тому
Recovering Testosterone After Hormone Therapy for #ProstateCancer | #MarkScholzMD #AlexScholz #PCRI
Treatments for #ProstateCancer Bone Metastasis | #MarkScholzMD #AlexScholz #PCRI
Переглядів 14 тис.3 місяці тому
Treatments for #ProstateCancer Bone Metastasis | #MarkScholzMD #AlexScholz #PCRI
Bone Metastases & Spot Radiation #ProstateCancer | #MarkScholzMD #AlexScholz
Переглядів 13 тис.3 місяці тому
Bone Metastases & Spot Radiation #ProstateCancer | #MarkScholzMD #AlexScholz
Your Gleason Score Matters | #ProstateCancer #MarkScholzMD #AlexScholz
Переглядів 48 тис.3 місяці тому
Your Gleason Score Matters | #ProstateCancer #MarkScholzMD #AlexScholz
Understanding Intermittent Hormone Therapy For #ProstateCancer | #MarkScholzMD #AlexScholz #PCRI
Переглядів 25 тис.3 місяці тому
Understanding Intermittent Hormone Therapy For #ProstateCancer | #MarkScholzMD #AlexScholz #PCRI

КОМЕНТАРІ

  • @edg531
    @edg531 54 хвилини тому

    I recently completed my 6th of 28 radiation treatments. I haven’t seen anyone else comment on this, but I wanted to say that although I am happy to be getting life-saving radiation, the process of keeping my bladder full and my bowels empty on a pinpoint schedule has been rather grueling... in fact, far more grueling than the radiation, itself. Has anyone else struggled with this?

  • @countdown2xstacy
    @countdown2xstacy Годину тому

    Great video Thanks !

  • @Vng370
    @Vng370 4 години тому

    I’ve going thru radiation now , and I have a overactive bladder what can be done for that side affect

  • @Ed-zr3fm
    @Ed-zr3fm 7 годин тому

    I had robotic prostate surgery, My PSA went from 8.2 to 4.7. What does that mean ?

  • @fredlevinssr3021
    @fredlevinssr3021 13 годин тому

    Would radiation therapy have helped if my prostate was totally cancerous? Which it was diagnosed after it was removed. I was able to get an erection after my surgery. It’s been about six weeks since my surgery and I’ve had several erections. So I’m just going to take it easy and let nature take its course. I wish you guys the best success! Stay Strong!

  • @glenrose7925
    @glenrose7925 14 годин тому

    Another great talk to help us take a deep breath and keep the panic at bay. Thank you.

  • @Eclectic_RN
    @Eclectic_RN 18 годин тому

    Excellent, I'd love to hear of the relationship of PSA results and risk, for instance a PSA of 12, vs 24, vs 55.... I'd love to hear about immune system (T-cell) targeting. Yes, the prostate resist them but I've read that very low carb with glutamine blockers, unlock the gates, so to speak allowing T-cells onto their target... That just sounds elegant much like the way 5-f or imiquimod works on BCC or SCCs.

  • @nestordupo845
    @nestordupo845 День тому

    Its 1 year next month and I have still incontinence not much and its not bother me anymore butbI still take betmiga tablet though. I have incontenence during my arousement because I take also diff meds for my ed.

  • @omarfarukdoola5679
    @omarfarukdoola5679 День тому

    I had an enlarged prostate.PSA was 5.83 Dr did A TURP and sent in sample for biopsy. Came back with a Gleason score of 4+3=7. Diagnosed cancer confined to the prostrate. After a week removed catheter and gave me a hormonal injection saying it will shrink and slowdown growth of cancer... The PSA after TURP was. 0.56. I did a PSA after 3 months came down to 0.08.. Dr wanted to do Brachytherapy and radiation immediately. I disagreed and went for a 2nd opinion suggesting removal of the prostrate. Side effects of excessive sweating and ED.. 4 months later still have those side effects... Thinking of having a removal of the prostate... Believe very little to no side effects in a experienced surgeon's hand

  • @brianwhite1565
    @brianwhite1565 День тому

    I have a PSA that has crept from 3 to 5 over the seven years since I turned 60. DRE showed asymmetrical enlargement, and bladder ultrasound showed PVR > 500 ml. I was switched from Doxazosin to Tamsulosin, and have worn a catheter for 5 weeks now, and the transrectal biopsy is still six weeks or more out, and I’m told to keep the catheter at least until biopsy. I have requested MRI before biopsy and requested a transperineal biopsy targeted at any lesions that may show in the MRI. Both requests were rejected without discussion. I’m now considering leaving the Urology department as they seem intent on scaring me into surgery, and seeking Interventional Radiology treatment called Prostate Artery Embolization. Thoughts?

  • @jerrymunroe5593
    @jerrymunroe5593 День тому

    Had BPH urinary symptoms (weak stream) before I chose radiation for my prostate cancer. I'm, undergoing my 44 radiation treatments and am noticing an even weaker stream of urine. My fear is becoming a reality as it seems it is getting worse to urinate, and I can only imagine what may happen. soon or even in upcoming years. I questioned my radiologist today and he said, "oh you might need a catheter" and walked away from me. I am living out my nightmare one day at a time in terror.

  • @TomChau-kg1zg
    @TomChau-kg1zg День тому

    Thanks for this informative video! Last year my MRI showed 1.6 cm lesion with PI-RAD 5, then I had 12 core biopsy and it gave me a gleason score 6. I just had MRI again and now it shows no lesion at the same area with PI-RAD 2. Can the 2nd MRI miss it that much? I am so confuse. Wonder if I should do MRI or biopsy again. My PSA went down from 4.06 to 3.5. Appreciate any comment or someone have similar case like me!

  • @helener2477
    @helener2477 День тому

    How do I find the best prostate Dr in our specific area. that's up on the latest research lik Dr Scholz is ? Do the research institute keep any kind of a list?

  • @helener2477
    @helener2477 День тому

    Is a 4+ 3 in 2 areas of a biopsy (multiply pieces) in a 66 yr old normally a good candidate for Brachytherapy ? other areas are 3+4 and 3+3 Pet scan shows it's just in the prostate at this point but who knows if that's accurate. (Sure hoping it is). I've heard if radiation is done and cancer comes back surgery isn't an option. Does that include Brachytherapy

  • @jabster58
    @jabster58 День тому

    What did he mean by it when he said he can keep a 75 year old alive till 95 easily? 8:18 on the time spot

  • @mperloe
    @mperloe День тому

    Alex, You might consider changing the graphic or title for this video. It implies it would just benefit those with advanced disease. This video would be helpful to anyone who receives a prostate cancer diagnosis.

  • @user-eq6zg8kw7k
    @user-eq6zg8kw7k 2 дні тому

    This was great. I hope to see more patient conversations. So many docs mention side effects almost in passing, but living with them is a different story. I have a very supportive wife, which helps immensely. I am 53 and had prostatectomy in 2022 at 51 and salvage radiation in 2023 at 52. I have been on ADT (Lupron and Aberatiron) for a year with a year left, maybe life for lupron. When I went on this journey, I knew a lot about the side effects, but actually experiencing them was more difficult. Someone mentioned earlier that interviewing a urologist who has been through PC would be good. I agree. I'd also like to hear from a caregiver on how their life changed with their spouse. We can't forget about caregivers because they are the hidden support and make life better when dealing with PC.

  • @joecable39nc
    @joecable39nc 2 дні тому

    Thanks for this I'll change my diet my dr hardly speaks English hard to get anything out of him I've asked this question to him his answer was continue eating way you are

  • @ChristianBaer-kr6wt
    @ChristianBaer-kr6wt 2 дні тому

    At the age of 72, I took part in a study for the early detection of PCa (Stockholm 3) with the following result: PI-Rads 4, PSMA-PET negative, Gleason 8. Interesting: My PSA was 3.0 and the increase compared to earlier measurements was age-appropriate. Nevertheless, radical prostatectomy due to Gleason 8 nine months ago. Erectile function restored 14 days after surgery, incontinence very stressful for four months ( leakage of up to 1,000 ml/day), steady improvement since then. Today continent except during running training with severe tiredness. - PSA not detectable since surgery. - Because of possible long-term consequences of radiotherapy and because I didn't want hormone therapy under any circumstances, I preferred the operation. I would do it again, even if the incontinence was severe.

  • @justinerogers1353
    @justinerogers1353 2 дні тому

    Is there any evidence that anaemia is present before any treatment i.e. it is indicative of prostate cancer?

  • @johnmchale8308
    @johnmchale8308 2 дні тому

    Dr Scholz, I have a PIRADS 4 one lesion, PSA steady range at 4.2, doing a targeted fusion Transperineal biopsy, no transrectal for me this Monday June 24, found a great Doctor in Manhattan affiliated with Weill Cornell. He will be doing a 12 core biopsy...is this necessary? The risk of infection is almost nill with this method. Please advise

  • @user-oi5em4th9h
    @user-oi5em4th9h 2 дні тому

    75 yr old. Original dx aug ‘21 Gl 7 4+3. EBRT caused too much pain and led to bladder cancer. Surgery & chemo took care of it. 4 weeks after chemo my wife died from a large glioblastoma. 4 weeks later I had HDR 9/17/21. 9/17/23 psa > 7 and dx stage 4 11/14/23. 1 6mo lupron shot on dx. I used RSO to go to no evidence of disease by 4/19/24.

  • @georgemarch3933
    @georgemarch3933 2 дні тому

    i have a gleason of 9,,got my prostate taken out in 2013,cells started coming back in 2021,,we keep in radiating them,,C-3 C-4 L4,,..just hah radiation on C-3 & L4 but dont know if the radiation killed the cells my psa was 9.6 My doc put me on 3 months shot s of lupron and xtandi,,in 1 month it came down to 0.05,, i asked my doc if i can get a PSMA to see if the cells are dead ? he said ins probably wouldnt cover it,your psa has to rise with with the treatment you are on,,thats crazy,i may be treating nothing?Am i a candidate for Lutetium 177 PSMA..something that goes after the cells and cures them,rather than keep me on these meds that just mask it and keep the pSA down,,,thes meds have side effects that i dont like,,,DR Mark Scholz,what do u think

  • @user-rm4mw6cd1h
    @user-rm4mw6cd1h 2 дні тому

    Psa went down to 1.7 after sabre treatment then to 1.5 but last test up to 1.6

  • @wamdn
    @wamdn 2 дні тому

    THE GREAT PROSTATE HOAX - SCIENCE TALK AND DISCUSSION Jul 27, 2017 The speaker Dr. Richard Ablin discovered the PSA value in 1970 and is now reflecting critically on its use for prostate cancer screening. ua-cam.com/video/lTjs0K-q5Is/v-deo.html

  • @jaktao6044
    @jaktao6044 2 дні тому

    Great ties!

  • @duggartaiwan786
    @duggartaiwan786 2 дні тому

    Doing combo Treatment now ❤

  • @leeclinkscales2584
    @leeclinkscales2584 2 дні тому

    About those side effects, mental and emotional issues should be included. Having no libido is no fun, but many of us find ourselves on an emotional roller coaster. Without testosterone, most are less aggressive, but how one feels about one's masculinity can be a major issue. Some of us cry very easily. While the above are testosterone related, I have noticed one fairly well known side effect; brain fog. I my case, I occasionally fail to put words in the proper order when speaking. Also, after being on it for 15 months, one effect I think is a direct effect of Abiraterone (Zytiga) is a loss of equilibrium. I'm not dizzy, I just can't balance without three points of contact. I'm now taking half the dose, and saw immediate improvement. Finally, please don't dismiss hot flashes as minor until you have experienced dozens of them a day. Thank you for all the videos.

  • @Pussypop69
    @Pussypop69 2 дні тому

    Iam using duatasteride for three days and dosage of 0.5 mg and my libido is cooked not gonna lie😢

  • @garygalarza-fg3bj
    @garygalarza-fg3bj 2 дні тому

    What do they mean when they say prostate intact no broad contact no focal bulge very low likelihood of ece grade on mri 0 put pirad4

  • @sandrawesterlund6566
    @sandrawesterlund6566 2 дні тому

    Appreciate so much all your videos and the information on Prostate cancer. My husband has stage 4 metastatic prostate cancer to bones. He just finished Pluvicto. He is awaiting his follow up PSMA to see how it has helped. But I his wife had seen the discussion on terminal prostate cancer and Actinium-255 was mentioned. I could not find any information on Actinium-255 but I did find an article on Actinium-225 for prostate cancer. Could the 225 be correct and not the 255 ?? Await your response. Thanks Sandra W

  • @barbarameehan113
    @barbarameehan113 2 дні тому

    Great info. Thank you. You give us so much hope.

  • @ancanfoundation
    @ancanfoundation 3 дні тому

    Thank you Alex and Ben - AnCan loves you both!!!

  • @ronniepace8778
    @ronniepace8778 3 дні тому

    Great post thanks - I just had PSA 6 but have zero symptoms-doctors keen to get me on medication - medication can have awful side affects - but I have no symptoms what do I do-I’m I. NZ we have few doctors I can’t actually get another doctors appointment perhaps for months.

    • @wamdn
      @wamdn 2 дні тому

      If you have no symptoms there is no problem.

    • @ronniepace8778
      @ronniepace8778 2 дні тому

      @@wamdn thanks for your support -am in NZ there is a shortage of doctors - the prescription was given over the phone from a doctor in the South Island.

    • @wamdn
      @wamdn День тому

      @@ronniepace8778 Check the side effects of that script. I’ve had prostate symptoms for decades including a high PSA but I’ve taken no scripts ; no biopsies; no MRIs. As a result, I’m not hooked on pharmaceuticals. I’m not incontinent and the wedding tackle still works. After years of some symptoms I attended a prostate seminar given by prostate doctors. They were honest doctors and said that most men die with prostate cancer - not from prostrate cancer. Sure, there are exceptions but Dr. Albin lays out the facts and stats in his presentation that I posted. Everyone must make their own decisions but weigh pharmaceutical side effects and invasive procedure injuries. Good luck.

  • @eddiegardner8232
    @eddiegardner8232 3 дні тому

    Going into my third year after diagnosis and treatment, now on TRT and feeling great, I think of you as my "Ace in the hole" if I ever get a recurrence. Thank you so much for your expertise, and for spreading it on these video presentations.

  • @andersonmsosa6266
    @andersonmsosa6266 3 дні тому

    As a survivor I add that detection of the malignancy in Prostate problem in the early stages contributes to complications that the individual ends up experiencing later. Detection and even awareness of the medical check relevant conditions is critical . Men should be aware what PSA or Gleason factor means . I initially attributed to my urine flow problems to old age until a nagging back pain at the time suspected to be a UTI condition persisted evenafter antibiotics. So medical Health systems in developing countries must improve with acquisitions of detection equipment . Treatment procedures is complicated . Most will be familiar with surgery procedure but for those who have gone through it experiences show that it's too rudimentary and attracts different deterring conditions in pain or after care . My Radiation therapy had a happy ending despite a range of side effects some which am still experiencing like crumping.

  • @duggartaiwan786
    @duggartaiwan786 3 дні тому

  • @jeff6899
    @jeff6899 3 дні тому

    Glad for this video ! Though still do not have complete answers. I had prostatectomy surgery. My cancer was growing predominantly on one side, wedged between urethra & edge on that side. My pathology report did confirm I had the suspected 4 + 3 = 7 Gleason score off a prior Targeted biopsy (post MRI w/ contrast)...but apparently I had the intraductal (I don't believe ductal) feature....on the surgery pathology report. No doctor to date has given me a "clear" indication as to what this meant ! Still somewhat in the dark...I had a CT scan, Bone scan, cystoscopy just prior to surgery---all were ruled negative for any cancer spread. The very top of my bladder neck was also removed druing surgery. I I did have a recurrence after early salvage radiation to the prostate bed...my 1st 2 PET scans (6/2/22; 3/24)--were negative...but the 3rd one (5/24) did show a small spot in the nearby pelvic bone. Extrapolating--My PSA was at a level (by latter recent test time date) where I should have had a roughly 55% or greater chance of showing up somewhere--which it finally did...to this nearby spot. They went back to the 2nd PET scan then to compare...and though readily inconclusive---they could see where maybe something was just starting to appear. A quick Biopsy confirmed cancer. I did go back on low dose Casodex; then got a lupron shot for the first time 2 wks later. The low dose casodex by itself did appear to be readily lowering my PSA (something was)...Fyi--I was on the low dose casodex for nearly 9 mo's b4 (after which my experienced radiologist initially thought I had no presence of cancer left--7+ mo's after salvage radiation---though I also supplemented w/ lots of homeotherapy, which may have had a positive effect & fooled him. So whatever type I have,--is "apparently" responsive (to date) to both ADT & PSMA PET scans... I just went thru 5 daily radiation treatments to eliminate that spot. Virtually no side effects; so far, nothing unmanageable on ADT either. ...Fyi, I was fortunate to get over incontinence fairly quickly--though I bike & exercise a lot--which I believe was helpful. A recent genetic test has shown I have no known genetic link to prostate cancer...virtually no family cancer history any known relatives

    • @simondumoulin2254
      @simondumoulin2254 3 дні тому

      By what you are describing, it seems like you suffer from the same condition as myself. However, my cancer is more advanced than yours. My diagnosis: Prostatic intraductal adenocarcinoma high-grade. Gleason 9(4+5), PSA 29, stage 4, metastatic The cancer has spread to my lower back and lymph nodes. This form of cancer is the most aggressive type and the most resistant to treatment. The outlook: 40% of men live 3 years after the diagnosis, 25% reach 5 years and less than 10% make it to year 10. It took me a few weeks to get all of this information and I had to pry most of it from my uro-oncologist. You are your best advocate. Only you know how you really feel. I have been on Casodex, Zoladex and Erleada. I also underwent 25 highest possible intensity beam radiation therapy sessions. As an example, I suffered terribly from the hot flashes and couldn't sleep well. My psychiatrist prescribed 100mg of Pristiq (venlafaxine) in the morning and 50mg in the afternoon. This alleviated 90% of the problem and I am mow getting sufficient REM sleep. My oncologist offered me nothing. My GP has also been a great help in keeping me comfortable and managing pain. Don't be afraid to ask questions or get a second opinion. Godspeed brother

  • @flavellinator
    @flavellinator 3 дні тому

    So the order should be: (???) 1. Blood PSA 2. MRI 3. Biopsy 4. PSMA 5. Treatment options

  • @simondumoulin2254
    @simondumoulin2254 3 дні тому

    I am 59 years old. Last year, I was diagnosed with high-grade prostatic intraductal adenocarcinoma. PSA 29, Gleason 9 (4+5) Stage 4, metastatic. The cancer spread to my back. I was given Casodex. A few weeks later, Zoladex was introduced. In July, I underwent 25 highest intensity sessions of beam therapy. In August, I began using Erleada with Zoladex. Last January, my scans revealed that the cancer had stabilized. My PSA is now at 0,1. The lymph nodes have shrunk significantly. I am very happy with this result. However, I still understand that I only have a 25% chance to survive another 4 years and a 9% chance to make it to 9 years. I am still hopeful to beat the odds and live another 10 years. The worst part has to be the ADT. I am getting every side-effect on the list. I am seeing a psychiatrist and a psychologist. That said, I consider myself lucky to have a terrific supportive wife and kids. BTW, for alleviating the hot flashes, I am taking 100mg of Pristiq every morning and another 50mg in late afternoon. This has been a game changer for me. Thanks for your testimony.

  • @wongsiang1133
    @wongsiang1133 3 дні тому

    Thank you👍👌 so much for Ben and Alex for these valuable informations because I am also suffering from prostrate cancer at moment.

  • @robwells230
    @robwells230 3 дні тому

    PCRI needs to hear more from patients. We hear from doctors who really know nothing about what patients really have to deal with except what drug companies and the NARCO MEDICO CARTEL wants them to know. I want to have a doctor who has personally been on two years of ADT CASTRATION, then I might believe what he tells me.

    • @simondumoulin2254
      @simondumoulin2254 3 дні тому

      I completely understand you brother. I have been on ADT for over a year now. I have every possible side-effect, except having a stroke. I lost my hair everywhere on my body, except for some facial hair and on my head. I gained 60 pounds and lost muscle mass. I wake up 3 times a night to urinate. I am unable to have relations with my wife. Mood swings, extreme fatigue, sleepiness, backaches, violent headaches, depression, melancholia, joint aches and osteoporosis. But that is not the worst part..

  • @roberthunter8232
    @roberthunter8232 3 дні тому

    My advice on the incontinence is to go and see a "good pelvic floor physiotherapist". Kegels are useless.

  • @ricknowak4582
    @ricknowak4582 3 дні тому

    I have four Gleason seven cores. I haven't started treatment yet. Because I am terrified that when I start either treatments that I will become a full-time customer of the medical profession. I'll be on medications giving blood tests the whole gambit. Which terrifies me. Listening to stories like this gentleman what he went through and what he's going through.

  • @ricknowak4582
    @ricknowak4582 3 дні тому

    I thoroughly enjoy these videos! The lady is such a great narrator. This was a very good video . I listen to all of them but this was a good one.

  • @ricknowak4582
    @ricknowak4582 3 дні тому

    I just don't trust the pharmaceutical companies.

  • @ricknowak4582
    @ricknowak4582 3 дні тому

    I have doubts with ADT because of all these years since 1971 when President Nixon gave almost two billion dollars to the cancer institution that there are ... STILL coming up with NEW medications!

  • @email3869
    @email3869 3 дні тому

    55 year old with Gleason 3+3=6, PSA 1.8, sizes 0.1 cm and .007 cm sizes.

  • @ricknowak4582
    @ricknowak4582 3 дні тому

    Dr Schultz talked about hormone treatments for prostate cancer and he says that studies recently have said that LOWERING testosterone has NO benefit combating cancer. That in fact lowering the testosterone might be worse!

    • @Mr406Galaxie
      @Mr406Galaxie 3 дні тому

      PCRI has a video on this very subject. I encourage others to watch that video.

    • @Lola.1952
      @Lola.1952 3 дні тому

      Where that video? I'd like to watch it as my hub has just gone over 2 years HT You mean Dr. Scholz said lowering testosterone is no good🤔

    • @Lola.1952
      @Lola.1952 3 дні тому

      @@Mr406Galaxie Schultz* (sorry)

    • @ricknowak4582
      @ricknowak4582 2 дні тому

      @@Lola.1952 Yes he said that. He didn't actually say it's NO good but he says it needs to be questioned. It was a recent one. Like within a month or two! And I've seen other studies concerning that. He was saying for.. favorable intermittent cancer you don't NEED to take ADT.

    • @Lola.1952
      @Lola.1952 2 дні тому

      ​@@ricknowak4582Sometimes, the more you learn about this issue the more confused you become. Different medical opinions or streams make you hesitate and you are never certain of having chosen the right decision. In any case I guess age, stage, personal priorities etc etc are factors to take into account when it comes to treatments. My hub had recurrence four years after RP, at 73 year age. He had RT to two spots and to the pelvic area as a prevention. Two years hormone deprivation and his current PSA is 0.01. Not too bad therapy side effects.

  • @ricknowak4582
    @ricknowak4582 3 дні тому

    Sorry but you mumbled when talking about the urethra problem you have urinating. Can you repeat what you were trying to say about what cancer will get you urinary problems?